20 February 2019
Caring & Living as Neighbours
Since making this commitment to the Updated EWEC Global Strategy in September 2016 CLAN and our partners at NICH (the National Institute of Child Health) are proud to have completed all commitment activities on time, with delivery of all four objectives:
1) Tokyo Declaration – preceding and during the 9th Biennial APPES Conference in Japan in 2016, all APPES members (more than 400 paediatric endocrinologists and specialist allied health professionals from across the Asia Pacific region) were invited to review and endorse the Tokyo Declaration, a statement outlining key challenges and recommendations relevant to the health and well-being of children living with endocrine conditions in the Asia Pacific. This document now guides ongoing work of the ACE (APPES-CLAN Equity) Working Group, with potential to impact the lives of the largest number of children in the world living with endocrine conditions (the Asia Pacific). Pressing public health issues such as equitable access to essential medicines, childhood obesity, management of nutritional rickets and the importance of newborn screening for congenital hypothyroidism were amongst the topics addressed in the Tokyo Declaration.
2) Pakistani Polio Community and Advocacy Events – on 11 March 2017 an inaugural advocacy workshop exploring rehabilitation services for post-polio community members in Pakistan was hosted by NICH in Karachi. For the first time, paediatricians, Pakistani Polio Community members, rehabilitation specialists, representatives of WHO, UNICEF, NCD Child and other key stakeholders came together to discuss the urgent need for quality rehabilitation services for polio survivors in Pakistan. Mr Gordon Jackman – a polio survivor and Executive member of New Zealand Polio – was a special guest speaker at the event, and continues to build sister links between New Zealand, Australia and Pakistan. The event was a unique opportunity to give polio survivors in Pakistan a voice, and advocate on issues important to them.
3) Child-friendly rights flyers – CLAN continues to work with partners from around the world to strengthen our child-friendly rights flyers, and empower and inspire children and young people living with NCDs around the world of their basic human rights to health and life. A CAH rights flyer was formally launched on 20 February 2017 (UN World Day of Social Justice), CLAN was proud to officially launch a new flyer in support of the international Congenital Adrenal Hyperplasia (CAH) Community. The CAH Flyer was shared at a Seminar on NCDs and Human Rights, which was co-hosted by the UNIATF on NCDs and the WHO GCM. The flyer has been translated into a range of languages (French, Spanish, Bahasa Indonesian, Urdu and Vietnamese) and formal evaluation is ongoing.
4) Equity scorecard – in collaboration with the Asia Pacific Pediatric Endocrinology CLAN was proud to conduct a snapshot survey of paediatric endocrinologists in the Asia Pacific region and share results with participants at the 2016 Biennial APPES Conference in Tokyo. Ongoing partnership between CLAN and APPES is exploring ways to most effectively address equity gaps in healthcare available to children living with endocrine conditions in our region. Development of an innovative mobile app is proving promising.
As an Australian-based NGO, CLAN (Caring & Living as Neighbours) utilises a rights-based, person-centred, community development framework for action to promote equitable health outcomes for children living with chronic health conditions in resource poor communities.
In support of the UN Secretary General’s Every Woman Every Child (EWEC) movement, CLAN commits to the following action until September 2017 so that EVERY child living with NCDs and other chronic health conditions might survive, thrive and transform:
- Partnership with the Asia Pacific Pediatric Endocrinology Society (APPES) to promote equity for children living with endocrine conditions in the Asia Pacific region
- Partnership with colleagues at the National Institute of Child Health (NICH) in Karachi, Pakistan to strengthen and support the Polio Community of Pakistan, and connect the Pakistani Polio community with the broader international Polio Community and facilitate key learning relating to Post-Polio Syndrome
- Partnership with international colleagues and advocates to expand development and formalize evaluation of child-friendly flyers outlining the rights of children living with NCDs
- Partnership with the private sector, health professionals and community members to promote equity for children living with Congenital Adrenal Hyperplasia (CAH) in the Asia Pacific
With regards to our ongoing commitment to Every Woman Every Child in 2014, CLAN proudly commits to ongoing advocacy efforts and action on behalf of children and adolescents, so as to protect and promote their international human rights to health, most particularly in the context of the unacceptably high burden of preventable disability and death caused by chronic health conditions and Non-‐Communicable Diseases (NCDs). To this end, CLAN will maintain our particular focus on children and adolescents who are living in resource-‐poor settings, with action at both the grassroots and global level.
In particular, at a grassroots level, in 2014 CLAN will collaborate with a range of partners to support community development based activities for children and adolescents who are living with Rheumatic Heart Disease in Kenya. CLAN will also continue to support existing NCD communities that we partner with in the Asia-‐Pacific region.
At a global level, CLAN commits to striving in its role as inaugural Secretariat of NCD Child to ensure the success of the second international NCD Child Conference, to be held in the Republic of Trinidad and Tobago in March 2014. Themed “Doing What Needs To Be Done” this conference will focus on practical recommendations and commitments, and the meaningful engagement of young people in advocacy efforts towards a life-‐course approach to the prevention and management of NCDs in the post-‐2015 development agenda. We commit to using the conference as a platform for promoting other like-‐minded organizations to consider NCD-‐related Commitments that they might contribute to the Every Woman Every Child movement also.
CLAN commits to continued grassroots work for children, with a special focus on: building the capacity of the Duchenne Muscular Dystrophy (DMD) community in Vietnam in 2013 for the 600 affected boys in north Vietnam; support of the Rheumatic Heart Disease (RHD) community in Kenya; and ongoing support of Nephrotic Syndrome, Diabetes, Autism, CAH, OI and other communities in the Asia Pacific region.
In addition, CLAN will build on last year’s commitment of the inaugural NCD Child Conference (held in Oakland, California in March 2012) to officially launch NCD Child from its current status as a “project of CLAN” to see it established as a global, independent, sustainable, rotating entity committed to promoting children and adolescents within the global NCD, health and development discourse. The NCD Child movement is an international multi-stakeholder coalition, championing the rights and needs of children, adolescents and youth who are living with, or are at risk of developing NCDs.CLAN (Caring & Living as Neighbours) commits to ongoing advocacy efforts and grassroots community development action on behalf of children and adolescents, so as to protect and promote their international human rights to health, most particularly in the context of the unacceptably high burden of preventable disability and death caused by chronic health conditions and non-communicable diseases (NCDs) in developing countries. Identifying children who are living with the same chronic health condition as members of a distinct community, CLAN utilizes a strategic framework for action (CLAN’s 5 pillars) to engage a range of partners to work with these communities to help the children enjoy the highest quality of life possible.
Using the September 2011 UN High Level Meeting (HLM) on NCDs as a springboard for future action, NCD Child (a project managed by CLAN) will collaborate with a range of stakeholders to run an international Conference on Children, Adolescents and NCDs in March 2012. The conference will focus on reviewing the UN HLM Political Declaration, and developing a comprehensive policy roadmap capable of guiding future international efforts to redress the many global inequities associated with NCDs and other chronic health conditions that currently impact on the health and wellbeing of children and adolescents.
In 2014 CLAN was proud to fulfil our commitment to the Every Woman Every Child movement, with the successful 2014 NCD Child Conference in Trinidad & Tobago (link to report here) and exciting launch of the Nairobi Rheumatic Heart Disease (RHD) Support Club in Kenya (report below).
The RHD Support club launch on 8th March 2014 in Nairobi was a BIG success by all means! Having families with RHD Children present was a BIG SUCCESS, as well as getting KEY RHD CHAMPIONS and success stories in one room. The report for the day can be found here.
Below are links to articles related to the launch.
To learn more click here.
CLAN Celebrates 10 Years!
- CLAN’s 2013-14 Annual Report is now online, and it is a fantastic opportunity to reflect on all that has been achieved but also future directions for CLAN’s work.